Each person’s experience of Huntington’s disease will be different; that’s why we develop a care plan in collaboration with our clients that is bespoke to their particular needs and wishes. That includes making sure we’re providing the highest quality clinical care, as well as structuring a plan that enables our clients to continue to live in their own home on their terms, whilst managing their symptoms.
We recognise that maintaining family life, hobbies, and interests is just as important as keeping well. We aim to enhance our clients’ quality of life by helping them to maintain the skills used in daily living that can deteriorate over time, or develop new skills as they adjust to these changes.
We can work with physiotherapists, who can assist with balance and walking problems, and with exercises to build strength while occupational therapists can advise on aids and adaptations. These all help clients retain independence and control in their home environment.
As with any chronic condition, the impact of Huntington’s disease extends not only to the affected person, but their family as well. We work to support the emotional wellbeing of our clients and the people close to them, making it easier for them to spend quality time together, as a family.
We know that our clients’ care needs and symptoms can change over time. Through continued monitoring by our clinical team and regular review, we ensure that our support reflects the ongoing needs of our clients.